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Ceili Rain won a pair of glasses.
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Ceili Rain won a pair of glasses.
Miss E rocked it with our kids. They loved having her there. This was the first time we’ve done lessons at this place. I loved that it was a semi-private lesson and she was able to teach to each child’s ability.
But by the end of season…swim parents are done. Just done. Mark was our model for this one.
So, the report was like this:
Now back to all things May…
The day after her MRI, we headed to our favorite people…the orthotists! It was a loooong appointment as she had to be fitted for her brace. But, again, we kept busy. Netflix and wifi—thank you!
She did great. But these pictures only tell half the story. Two days of poking and prodding and our girl was so sad by the end of this second day. After we finished with the fitting, she jumped into her daddy’s arms and had a good ol’ cry. Our orthotist thought something was wrong. No. She’s just tired. She has to wear a brace and has had to wear one most of her life. This. Is. Not. Easy. Our brave girl trusts that what we are doing is for her good. By the end of the first week, she was already up to wearing her brace 16 hours a day.
Emmie was hot. I was hot. Everyone was hot. Daddy was out of town. It was long night at our first swim meet.
Anyway, at the end of the month, we shipped Ace off with Papa and Grandmere for a mission trip and also had MRI #9 and a new brace fitting. We managed to squeeze in a visit with Ge & Granddaddy in between Emmie’s appointments.
Ace worked hard and learned a lot on the mission trip. We missed him so much. I think he missed us a little but he told us later he really enjoyed having the quiet.
Hanging out with Granddaddy is always a treat. They have matching heads!
After all the appointments, we headed out to a local park. It was a good stress reliever.
We were even able to cool off in the splash pads!
Tobin was done by the end of that day.
Emmie’s new Rigo brace. She has adjusted very well to it. Her orthotist told us she was the youngest at CHOA to be fitted for this brace. We learned in June that up until that month, she was the youngest at CHOA to have a halo brace. My girl, breaking the mold since 2014.
Emmie with her ballet teacher, Miss Mallory!
Emmie had her first ballet recital (and it happened to be on our wedding anniversary). She was beautiful and loved every second of it!
I think she fell in love with the stage!
I even got her hair up in a bun! Emmie takes ballet with a group called Steps of Grace. This is a great ballet group for ALL kiddos no matter their level of ability. What’s wonderful to me is that her ballet teacher is an occupational therapist and there are volunteers that work with the kids who are in school to be occupational therapists. Emmie has grown, no doubt, because of her ballet class and we look forward to the next year of dance!
Emmie turned 4 in May! Ya’ll, can you even believe it?! Four years ago, I could have never imagined the journey we would have with this girl. I’m going to post an MRI update soon but May and most days, we get to celebrate our amazing super hero. These are the warrior beads we started with Emmie. They’re in order, left to right, and each one represents a year of her life. Yes…that second year was a rather active one. It’s been great to see the beads stay a little smaller since then!
Partying first with Ge & Granddaddy. She was so excited with each gift she opened.
We squeezed in gift opening between a Lady’s brunch at church and swimming and concert.
She was so excited with each gift. Her highlight were Ladybug Girl books. When Emmie had her first surgery, my mom and I were walking in the lobby and happened upon a book giveaway. The volunteer told us to grab a book for our girl. I found Ladybug Girl Goes to the Beach and thought it was cute. We sometimes call Emmie’s cafe au lait spots ladybug spots…perfect. Little did we know how she would fall in love with that book. Over the past few years, she has made every single person in our family read the book to her and some of us have to read it over and over. Of course, the girl’s name is now Emmie (originally Lulu) and the dog (who is Bruno originally) is now Tot Tot. She asked for a ladybug cake and ladybug wings. Of course, I can’t stop there…she had to have an outfit just like Ladybug Girl.
My first attempt at using rice crispy treats to sculpt did not go well.
I pulled it off though.
Our beautiful Ladybug Girl!