Category Archives: 2017

Forty

Posted on by
Reply

November brought my fortieth birthday.  I guess I shouldn’t say that…curl up in a ball…cry giant tears.  Whatever!  I have no shame in getting older.  I think I’ve lived a good life.  Not really one I was planning but way better.

Mark did an amazing job making sure the day was special.

Like conspiring with one of my besties who lives in Pennsylvania for her to drive all the way down here.And then sending me out with both of my besties for breakfast.  These two women are my nursing home conspirators.   You know…the women who are going to put up with me until I’m old and gray and we’re rocking on the front porch reminding each other who we are.   He had the kids prep and make cards for me. And a giant spread of lunch goodies. Friends stopped by to make goofy faces and eat with us. And my parents came up.  Sure, they came for me…but honestly, they came to love on the baby. I got some Tobin loving too. I even got a wished for bike shirt ordered from Children’s Tumor Foundation.
Tobin wasn’t too sure what to think about Granddaddy. After a trip to Emmie’s ballet, we rushed the kids home for Mark and I to go out to eat at The Chophouse.
I got to celebrate my birthday throughout the week while Kristina visited with us. And then we all went to see Wonder based on the book by R.J. Palacio.  It was amazing and a wonderful end to celebrating another decade.

Facebooktwittermail

Welcoming Tobin

Posted on by
Reply

We have been blessed to be members of church family that celebrates every baby that comes in to our church.  Tobin was no exception.  The ladies in our church put together a beautiful shower to celebrate Tobin’s birth.
Fun games Sweet gifts Absolutely adorable decorations And, our church is never hurting for some good food.  This was the best carrot cake I’ve ever had. Tobin loved getting cuddles from everyone…including G. Baby pants…always adorable. The girls had fun playing dressup with the tissue paper.

The women gifted Tobin a Bible and highlighted special verses in it. I  can not wait to give this beautiful memory to him.

Facebooktwittermail

Down on the Farm

Posted on by
Reply

We enjoyed a trip to a local dairy farm which also happens to be a corn maze and a lot of other things like… A cornbox (sandbox)… Water trough play area… A giant sand pile… play areas… And a corn maze! The littles (with mom and dad) beat the bigs through the maze! Also, the dairy had fun train rides and pony rides. Some great archery experts gave us all excellent pointers.
Even I got a bullseye! And Emmie had a blast.

Facebooktwittermail

Tobin is Two Months!

Posted on by
Reply

In some ways, I can’t believe Tobin is already two months…but ya’ll…in others I can totally believe it.  Over the past week, he’s started tolerating being put down, but for a long time he was very cranky during the day.  We knew our streak of chilled babies wouldn’t last.  It’s not a big deal.  He loves people and is very energetic and he easily hands out smiles like it’s no one’s business.  He also sleeps through the night anywhere from five to seven hours!  So, while he may be a high energy daytime baby, he gives us some good breaks at night.

At two months, he makes great eye contact, can track objects (if he wants to) and loves the fan and lights.  He also loves his siblings.  Lately, Tot the Dog has been catching his attention and Tobin thinks he is hilarious.  He’s started giving little belly laughs, too.  He also enjoys chewing on his fist.  Thankfully, no real signs of teeth yet!

Two month stats:  14 lbs 12.2 oz, 23 3/4 inches long.

I know ya’ll think he’s a chunker and he looks like it.  However, we looked back at the other kids.  He comes in about an ounce smaller than Ace and Josiah at two months.  They were also an inch or more taller than him.  He does have linebacker shoulders and an adorable muffin top with little rolls on his legs.  

I love that he doesn’t just smile with his mouth.  When he grins, his whole face just lights up.

His two month check up was bittersweet.  I remember, and probably always will, walking into Emmie’s two month check up and hearing a medical professional say Neurofibromatosis.  To walk in with Tobin and have a perfectly “boring” well-check, was great but also a big reminder of how far we have come with our super Ems.

I know people have wondered if Tobin could have NF.  Of course we wondered too.  When he was born, my first question was not if he had ten fingers and toes, but if he had cafe au lait spots.  For the curious, no.  He doesn’t have a single one.  Tobin does not have NF.  Emmie’s NF is spontaneous which means that neither Mark nor I have it (if we did, we would definitely have more than one child with NF).  So, the chances of Tobin being born with it are still one in 3,000 like every other baby without it in their family.

As with all of the other kiddos, we are so grateful that we have our beautiful baby boy!  He is a blessing to our family and brings such delight to us all.

Facebooktwittermail

The Good, The Bad, The Ugly

Posted on by
Reply

Emmie had her appointment today with Shriner’s Hospital for a second opinion.  First of all, I have to say that they definitely lived up to their reputation. They were great with Emmie and open and honest with all of us.

Here’s the good, the bad, and the ugly of what we learned.

The Good

The orthopedic doctor fully agreed with the current treatment for Emmie’s scoliosis and the amount of time between appointments.  We don’t want to expose her to any more radiation than is absolutely necessary and there really isn’t much that would change in her course of treatment.  It was great to hear a doctor affirm that she is getting just what she needs at CHOA.

The Bad

We learned today that Emmie is not a good candidate for casting.  In fact,the orthopedic doctor stated simply that this can not happen because of her spinal fusion in her cervical spine.  Casting requires traction which would tax the fusion and would cause severe nerve damage. This is a bad because casting has been found to help greatly in idiopathic scoliosis.   We also got confirmation that because Emmie has NF, her scoliosis is not considered idiopathic.  The research we have done has shown that casting for progressive scoliosis can lead to a great improvement and delay spinal surgery by a lot.  So,no casting removes the only other treatment for progressive scoliosis.

The Ugly

That leads us to “the ugly.”  He basically told us what no one else has…that we are going to be bracing and bracing and bracing until the spine gets bad enough to need surgical intervention (which we hope is years away).  We knew she would need surgery but until we heard a doctor say that, then we could just be in denial.  As I’ve said many times, NF bones are very weird and do not act like normal spines even “normal” scoliosis spines.  Add to that Emmie’s spine history…well, we know the spine isn’t going to correct.  We also know it will get worse.  It’s just a matter of getting  her as close to maturity as possible before we have to do surgical intervention.  So, the brace, as we know, is there to slow the progression of the curve as much as possible.

Like I said, we were grateful for the open honesty the doctor provided and again, the affirmation that she is getting the best care needed.

We’re here again…the ol’ Wait and Watch routine.  We’re adding in prayer as well.  Please join with us in praying that the spine does not progress fast and that we can avoid surgery for years to come.  I hate she has to live in a brace. She’s worn a brace most of her life.  It’s what she knows and it barely phases her.  But it is so hard to watch her deal with these crazy restrictions and challenges that many three year olds never have to deal with. Please continue to pray she can continue tolerating the brace with her dynamite warrior attitude as she has so far!  Please pray for strength as we seek to glorify God through all that our super hero encounters.

As a treat, we bundled up and visited beautiful Falls Park at the Reedy in downtown Greenville.

Facebooktwittermail

Curve-ball

Posted on by
Reply

It’s about a time for an update.  Emmie had a five month check up for her scoliosis in November. We met with the nurse practitioner at her orthopedic doctor’s office.

The Good New:  Her curve has increased to 29 degrees but is still considered stable since it is still under a degree a month (last measurement was 27 degrees in June).  Basically, we can say the brace is slowing down the curve progression.

The Bad News:  Her spine is leaning significantly more to the left than it was in June.  This is obviously not a good thing.  The nurse practitioner stated that Emmie would need to meet with her orthopedic doctor for the next check.  If the x-ray shows more leaning, then we’ll have to look at a different intervention.  We set her next appointment for five months from November.

A week later, Mark and I were talking. We both realize that NF kids have crazy, weird bones that tend to do their own thing.  We reflected back to Emmie’s second MRI and how her cervical kyphosis came up but was dismissed and only six months later it went from a “possible positioning” to “severe cervical kyphosis.”  We were blindsided and will always wonder if the progression were caught sooner would we have been able to delay the halo even more.

Because of all of that and after consulting our pediatrician, we decided to seek out a second opinion.  We’ll be meeting with a doctor at Shriner’s Hospital this month just to make sure we don’t need to be a bit more aggressive in our treatment.

Like I said earlier, NF bones do their own thing and don’t like to follow standard early onset scoliosis protocol (if there is such a thing).  We know she’ll need stronger interventions for this part of NF.  While we would love to wait as long as possible for those interventions, we know if she needs it now, then so be it. God has shown us over  and over again that He is in control of Emmie’s life (well,all of us,but we can see it more clearly with Emmie).  We trust Him to lead us and the doctors we are meeting with.

 

Facebooktwittermail

October Randoms

Posted on by
Reply

Welcome home work for Baby Tobin (and Mama)! Zoe had a rough month of testing.  She took the SAT and PSAT for the first time.  We celebrated with our favorite eat out place!  I’m so proud of how hard she is working in her first year of high school. She also got some great blue highlights. Lulu and Tot welcomed Tobin with lots of sniffs and licks and made sure to cuddle up with me to protect us both.
Silas built Tobin his name in legos! Emmie loves her bracelets. Everyone enjoyed visiting Tobin while I recovered. Emmie took a good nap on daddy during church. Tobin’s first family outing.  All twelve ventured to the library.
S’mores night! Pumpkin carving Scary face pancakes at IHOP are free on October 31st.  We love free food.  Especially when you can play with it.

Daddy took the kids and dogs for a walk.

Facebooktwittermail

Welcoming Baby Tobin!

Posted on by
Reply

Enough with the words!  Time to oohh and aahh over the newest member of the bunch. Ge and Granddaddy were so excited to be able to come down to meet Tobin.  October is a super busy month for them!

I think big sister was super excited to meet her baby brother. The other kiddos were pretty smitten! Grandmere got in some extra cuddles.
Bright eyes.  Tobin has tipped the scales to the blue eyes for the majority…so far.  We are all still thinking that they’ll be more hazel/green in the end, though.Aunt Tracy stopped by after an appointment to check on their baby one day. But also brought the family by to meet Tobin!  Her kids were super excited and are getting so ready to meet their new baby brother or sister. Dr. B, our friend and chiropractor, came by to give Tobin some loving but also to help us get him to wake up to eat (he liked his sleep the first 48 hours). Our wonderful Dr. J who has delivered all nine of our babies!   There are very few things as relaxing as cuddling with a newborn.

Facebooktwittermail

Tobin’s Birth Story

Posted on by
Reply

How about a birth story to celebrate Thanksgiving?

While Tobin’s birth story isn’t full of all of the uncertainty that our other births came with, it was still very special to us.  When we found out we would be having another c-section (our hospital does not allow for a vbac after two c-sections), I have to admit that I was more than upset about it.  I spent weeks praying and crying and generally frustrated.  My c-sections were not horrible by any means.  However, not only was I going to have to have another c-section but the hospital where I had delivered eight of our babies had been bought by one of the larger hospitals in our area and was no longer doing labor and delivery.  We had no choice in which hospital our insurance would pay to.  The hospital we were to go to is large and probably does the most deliveries in our area.  I just knew that it was going to be impersonal and sterile and by the book “baby factory.”

In the long run, I had to pray a lot.  I knew we were with the doctor we needed to be with.  I had to eventually admit that we were at the hospital God wanted us to be at for delivery and that God was fully in control of this delivery.  I still prayed that God would allow me to go in to labor and we would “sneak” in to the hospital without having to have a c-section (with my history a home birth would not be safe for me).

So, about a month out, we negotiated Tobin’s birth date.  Dr. J was willing to let me go to the week of my due date since I usually don’t go in to labor until after 40 weeks.  I worked hard to get a delivery date after the due date…because, ya’ll don’t laugh…my besties birthday was that week and we agreed to have our babies on each others birthday (as luck would have it, she didn’t deliver her baby on my birthday either).  He wasn’t convinced and was quite surprised that I wanted to actually go past my due date.  So,we set Tobin’s birthday for October 16th.

For us, we prefer our new babies stay with us at all times.  That means we don’t use the nursery for anything more than what is absolutely necessary for medical issues.  We are 100% behind family-centered childbirth and after-care.  From watching friends births, we had not seen this particular hospital be anything but that.

Getting ready to meet Tobin!

We arrived at the hospital bright and early and ready to meet our Tobin and praying for a beautiful positive experience.  Getting prepped for surgery, I was asked if I would be breastfeeding.  I responded, that I would be breastfeeding exclusively.  The nurse asked if we wanted “no separation.”  While I had no clue what that was, it sounded exactly what I wanted and she quickly made note of it.   Another nurse came in and told Mark that he would stay with Tobin the entire time and if they needed to go to PACU, he would not leave him.  She was adamant about that.  I felt like God was giving us a reassurance that we wouldn’t miss a minute of bonding with our little one.  I made sure to tell them that I wanted to see him as soon as I could and I wanted to do skin to skin as soon as possible.  Each time I mentioned it, their response was, “Absolutely!”  They were also very accommodating to my wish for very little narcotics (they make me feel absolutely horrible and I usually go to sleep with them…or throw up.).

After they got me prepped for surgery, Mark came in and sat with me.  When Dr. J was close to delivering Tobin, he told Mark to stand up to see his son be born.  Mark was thrilled to be able to watch! As soon as Tobin was delivered, the nurse brought him over for me to not only see but to touch and love on.  They kept my arms free to move so I could love on him (previous c-sections I had them strapped down and had to ask for them to be freed to reach him).  They took Tobin over to the incubator to do his vitals and make sure he didn’t need any suctioning and then brought him back over to me.  The nurse held him close so I could give him kisses and love and then nicely told me they needed to make sure his grunting was nothing more than that (it was fine..this kid sounds like a pterodactyl all the time!).

Tobin Asher

8 lbs 12 oz

21 inches long

Getting some good Tobin love!

After surgery, they wheeled me to recovery with Tobin and immediately got to hold him for skin to skin.  Ya’ll, if you have a baby, skin to skin is the biggest way to bond with baby and has been such a blessing to do with Emmie and now with Tobin (my only ones to do this with).  Tobin was placed on my chest but when he was placed, he did something I’ve never been able to experience.  He did the breast crawl to nurse!  It was such a beautiful and pretty neat experience!

We continued to have a great hospital stay as Tobin went to the nursery for probably about 30 minutes total (during our entire stay) for weight checks and a blood draw.  They were good with us bathing Tobin as needed or when we felt he needed it and even encourage babies to not be bathed for the first six hours to help keep their body temp up.

Recovery was great.  I didn’t really need any narcotic pain meds excpet for Toradol (which should really be oral instead of just through iv.  That pain med is wonderful).  I advise anyone who goes through a c-section to plan to be in bed for a week doing absolutely nothing but bathing, bathrooming, and feeding and loving on baby.  After a week and with a little bit of compression on my abdomen, I was able to get up and move relatively well.

Tobin means “God is Good” and Asher means “blessing.”  Our Tobin comes after a crazy three years of medical issues with Emmie and an adoption as well as two miscarriages.  One of which was our sweet twins.  Through all of the trials, the joys and the struggles…we have sought to praise God because He has been so good to us and for us.  Tobin is truly a blessing to our family and there is not a day that goes by that we don’t thank God for allowing us to be his parents.

Every good gift and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shadow due to change. Of his own will he brought us forth by the word of truth, that we should be a kind of firstfruits of his creatures.James 1: 17-18

 

Facebooktwittermail